Virginia Regulatory Town Hall
Virginia Department of Health
State Board of Health
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend regulations based on recommendations of VA Genetics Advisory Committee
Comment Period Ended on 3/13/2013
Previous Comment     Next Comment     Back to List of Comments
2/13/13  4:33 pm
Commenter: Vicki Kirby

Say Yes - Expand the Virginia Newborn Screening Program to Include SCID

Please expand the Virginia Newborn Screening Program to include SCID. The statistics that are out there are correct. If a newborn is properly screened for SCID, diagnosed and treated within the first 4 months of life, there is a 94% chance that these babies will live normal productive lives. SCID's is a disease that I am very familiar with. In 2002, I became a bone marrow doner for a 6 month old infant who was diagnosed at the age of 4 months. As part of the National Marrow Registry, he was an international recipient. He is a survivor! His mother is a big advocate in the UK for SCID's and I want to do my part as a proud Virginian to make sure that we are taking care of our children and doing the necessary screenings to assure their good health.

CommentID: 25927