Virginia Regulatory Town Hall
Virginia Department of Health
State Board of Health
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend regulations based on recommendations of VA Genetics Advisory Committee
Comment Period Ended on 3/13/2013
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2/13/13  4:22 pm
Commenter: Deidra Bralley

SCID screening for newborns in Virginia

Please, please, please add SCID screening for newborns in Virginia.  The pain I witnessed  watching my niece and her husband endure 5 hard months, trying treatment after treatment to try and save their newborns life was painful.  This poor baby experienced 5 very painful months while he was here, and fought the whole time.  He wanted to be here as much as we wanted him to be here.  He left behind a huge following of people that never got to meet him and made a huge impact on everyone's life.  He had a big sister that had to watch and experience something she should never  have had to.  I presently have a son that's girlfriend will be having a baby in August.  I would like to think that they wouldn't have to endure any similar experiences.  This testing shouldn't be anything we should be having to sign petitions for or beg for.....this should be a given.  Again, please add this testing for newborns in Virginia.

CommentID: 25926