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Virginia Regulatory Town Hall
Agency
Virginia Department of Health
 
Board
State Board of Health
 
chapter
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Public Comment Forum
On this Action: 
Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System
 
Proposed Stage - View the regulatory documents

CLOSED     Opened on 5/10/2021 and Ended on 7/9/2021

More about public comment forums and policies
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 Comment Title  Commenter
Newborn Screening Julia W. Pollard  7/9/21  4:56 pm
ALD Newborn Screening Helen Carneal  7/9/21  3:59 pm
VHHA Public Comment on Regulations Governing Virginia Newborn Screening to add SMA and X-ALD Brent Rawlings on behalf of Virginia Hospital & Healthcare Association  7/7/21  2:59 pm
SUPPORTING ALD NEWBORN SCREENING Nancy jones  7/7/21  10:56 am
Important to screen for ALD in newborns Richard Bragg  7/7/21  10:02 am
add x-ald to newborn screening system Valeria Murphey  7/7/21  9:59 am
Add SMA and X-ALD Screening to NBS in Virginia Cassandra Barrett  7/6/21  12:35 pm
ALD Testing in Virginia Newborn Screening System Anonymous (99343)  7/3/21  6:48 pm
Early testing yields results! Doris Birdsong  6/30/21  2:16 pm
Virginia Newborn Screening System. John Tripodi  6/29/21  12:35 pm
X-ALD & SMA screenings Anonymous (99273)  6/28/21  9:00 am
Virginia Newborn Screening for ALD Karen Nye  6/27/21  10:04 pm
Add SMA and X-ALD to the VA Newborn Screening System John and Wilma Tripodi  6/25/21  12:18 am
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) - Support the Rule Proposal Sarah Shiner  6/21/21  12:18 pm
Support of SMA screening in Virginia Mary E  6/16/21  3:32 pm
SMA screening in Virginia Cathy B  6/16/21  3:21 pm
Bryce's Voice of BLUE HOPE Brenda Buracker  6/15/21  1:20 pm
newborn screening Melissa Hart  6/15/21  8:50 am
Add SMA & X-ALD to NBS! Jessica White  6/14/21  2:08 am
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) - Support the Rule Proposal Janet Colvin  6/10/21  9:01 pm
Add X-ALD and SMA to the VA Newborn Screening Panel Maria Damico  6/9/21  11:50 pm
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) William Sheranek  6/7/21  8:25 pm
Add SMA to Newborn Screening Debra Schaefer, Virginia Chapter, Cure SMA  6/6/21  1:32 pm
adding SMA and ALD to newborn screening Dan Robbins  6/3/21  1:35 pm
Newborn screening Wendy Glenn  6/3/21  1:29 pm
Support SMA Screening! Anonymous (98927)  6/3/21  11:40 am
Fully Support adding SMA to newborn screening Elise Jackson  6/3/21  11:19 am
Newborn SMA Screening Robert U.  6/2/21  10:47 pm
Newborn Screening Panel of SMA Katie U.  6/2/21  10:40 pm
We Support SMA Newborn Screening Rebecca Scharf  6/2/21  4:55 pm
Life or death matter Robin Westbrook  6/2/21  4:51 pm
(12VAC5-71) to add SMA and another disorder (X-ALD) to Virginia’s newborn screening panel Julie Sheffer-Chase  6/2/21  4:19 pm
Add SMA and X-ALD to Virginia’s newborn screening panel Anonymous (98901)  6/2/21  3:39 pm
Support of Implementation of SMA Newborn Screening in Virginia Shea Clingerman  6/2/21  3:36 pm
Newborn Screening of SMA in Virginia Aaron McKain  6/2/21  3:25 pm
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) - Support the Rule Proposal Anonymous (98897)  6/1/21  9:22 pm
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) - Support the Rule Proposal Hannah Robbins  6/1/21  11:42 am
Please amend regulations to add SMA and X-ALD to the Virginia Newborn Screening System Debra and Kendall Shaw  5/30/21  6:58 pm
Add X-ALD and SMA to the VA newborn screening system Sarah Parramore  5/27/21  3:48 pm
I support the proposal to add X-ALD and SMA to the Virginia Newborn Screening Panel. Tory B  5/27/21  10:28 am
In favor of adding ALD screening to routine screening panel Anonymous (98874)  5/27/21  9:08 am
Add ALD to Virginia Newborn Screening Panel! Justin Parramore  5/27/21  8:29 am
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) - Support the Rule Proposal Harrison Shiner  5/27/21  4:26 am
amendment to 12VAC5-71-30 Anonymous (98840)  5/26/21  6:39 pm
VA Newborn Screening Panel Kathleen  5/26/21  3:37 pm
ADL to the Va Newborn screening panel Carolyn Bahen  5/26/21  1:01 pm
Screening support Jessica  5/26/21  10:39 am
ADD ALD TO NEWBORN SCREENING JIM BRINSON  5/25/21  11:09 pm
12VAC5-71-30 Add X-ALD and SMA to the VA Newborn Screening Panel John Hughes III  5/25/21  9:16 pm
I support the proposal to add X-ALD and SMA to the Virginia Newborn Screening Panel. Anonymous (98745)  5/25/21  9:15 pm
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) - Support the Rule Proposal Lindsay Mahanes  5/25/21  9:15 pm
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) Mike Brinson  5/25/21  8:37 pm
Add ALD to newborn screening panel!! Claire  5/25/21  8:07 pm
Strongly Support the Rule Proposal to Add X-ALD and SMA to the VA Newborn Screening Panel Lauren Brinson  5/25/21  8:01 pm
FULLY SUPPORT ALD & SMA NEWBORN SCREENING Tom Sheranek  5/25/21  7:45 pm
Support for Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) Sheila Sheranek  5/25/21  6:39 pm
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) Anonymous (98734)  5/25/21  6:19 pm
Support! Joseph R Chirco  5/25/21  12:38 pm
Infants with ALD or X-ALD can be diagnosed through newborn screening. In 2016, ALD was added to the Kathy K Lagana  5/25/21  9:34 am
Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) - Support the Rule Proposal Danielle Hawkins  5/25/21  9:18 am
FULLY SUPPORT ALD & SMA NEWBORN SCREENING Sandy Bartal  5/25/21  9:08 am
FULLY SUPPORT ALD & SMA NEWBORN SCREENING Kay Lagana  5/24/21  8:50 pm
Newborn Screening Anonymous (98688)  5/24/21  8:37 pm
Newborn Screening Lisa Price  5/19/21  7:01 am
Cure SMA Supports the Rule Proposal to Add Spinal Muscular Atrophy to VA's Newborn Screening Panel Maynard Friesz, Cure SMA  5/14/21  10:54 am
65 comments

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