Virginia Regulatory Town Hall
Agency
Virginia Department of Health
 
Board
State Board of Health
 
chapter
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System
Stage Proposed
Comment Period Ended on 7/9/2021
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6/2/21  3:39 pm
Commenter: Anonymous

Add SMA and X-ALD to Virginia’s newborn screening panel
 

As the mother of a child with SMA, I wholeheartedly support adding SMA screening in Virginia for newborns, along with X-ALD screening. Now that treatments have been approved for SMA, it is vital that infants be diagnosed as early as possible.

CommentID: 98901