|Action||Amend regulations based on recommendations of VA Genetics Advisory Committee|
|Comment Period||Ends 9/12/2014|
I kept up online with the difficult hospitalization and death of a baby afflicted with SCID. Although I did not know the parents personally, I was deeply affected, as anyone would be, to witness such a loss. If the parents of newborns who suffer this disease are recommending that it be added to newborn screenings, I suggest that we listen to them.