Virginia Regulatory Town Hall
Agency
Virginia Department of Health
 
Board
State Board of Health
 
chapter
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend regulations based on recommendations of VA Genetics Advisory Committee
Stage Proposed
Comment Period Ended on 9/12/2014
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7/21/14  9:17 pm
Commenter: Clare Rannigan

Please add SCID to routine newborn screenings
 

As the grandmother of a beautiful grandson who lost his battle with SCID at 5 months of age I implore you to add this test to newborn screenings in Virginia.  SCID is highly responsive to treatment if diagnosed at birth (94%-97% success rate). 

CommentID: 33595