|Action||Amend regulations based on recommendations of VA Genetics Advisory Committee|
|Comment Period||Ends 9/12/2014|
My wife and I have lost one child to SCID and had another who fights for his life everyday. My 3rd child, Brody, passed away on 7/7/8. At the time, the doctors didn't know why. When my 4th, Brayden, was diagnosed with SCID, everyone was very confident that Brody died from complications from SCID and was never diagnosed properly. The test costs so little and can save so many lives. The sooner SCID is diagnosed, the easier it is to treat. This is a 100% no brainer that must, must, MUST, occur!!
Here is Brody's virtual memorial page. Honestly, if this doesn't move you to work towards this, I do not know what will. And it must happen now.