Agencies | Governor
Virginia Regulatory Town Hall
Agency
Virginia Department of Health
 
Board
State Board of Health
 
chapter
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend regulations based on recommendations of VA Genetics Advisory Committee
Stage Proposed
Comment Period Ends 9/12/2014
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7/21/14  8:35 pm
Commenter: Edward Rodriguez

This must happen!
 

My wife and I have lost one child to SCID and had another who fights for his life everyday. My 3rd child, Brody, passed away on 7/7/8. At the time, the doctors didn't know why. When my 4th, Brayden, was diagnosed with SCID, everyone was very confident that Brody died from complications from SCID and was never diagnosed properly. The test costs so little and can save so many lives. The sooner SCID is diagnosed, the easier it is to treat. This is a 100% no brainer that must, must, MUST, occur!!

Here is Brody's virtual memorial page. Honestly, if this doesn't move you to work towards this, I do not know what will. And it must happen now. 

 

http://www.virtual-memorials.com/main.php?action=view&mem_id=14431&page_no=1

CommentID: 33585