Virginia Regulatory Town Hall
Agency
Virginia Department of Health
 
Board
State Board of Health
 
chapter
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System
Stage Proposed
Comment Period Ended on 7/9/2021
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6/3/21  11:19 am
Commenter: Elise Jackson

Fully Support adding SMA to newborn screening
 

I fully support the important addition of SMA to newborn screening as it will save many lives with the new medications that are available. The sooner the diagnosis is made, the faster we are able to save function in these patients, which will have life long impacts from activities of daily living to independence. This is extremely important. Thank you!

CommentID: 98925