Action | Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System |
Stage | Proposed |
Comment Period | Ended on 7/9/2021 |
I fully support the important addition of SMA to newborn screening as it will save many lives with the new medications that are available. The sooner the diagnosis is made, the faster we are able to save function in these patients, which will have life long impacts from activities of daily living to independence. This is extremely important. Thank you!