Virginia Regulatory Town Hall
Agency
Department of Medical Assistance Services
 
Board
Board of Medical Assistance Services
 
chapter
Waivered Services [12 VAC 30 ‑ 120]
Action Three Waivers (ID, DD, DS) Redesign
Stage Proposed
Comment Period Ended on 4/5/2019
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3/16/19  5:05 pm
Commenter: Jessica Bulos

Comments on Disability Waiver Redesign
 

I fully support and agree with all the comments made by the Virginia Ability Alliance regarding the changes to the Virginia Disability waiver regulations. I am a parent of a child with Angelman Sydrome (age 7) who requires full assistance with all ADLs, cannot speak, is not welcome at a traditional day care, and requires many weekly therapies. The DMAS-62 form is a very cursory form that is I’ll equipped to properly assess a disabled individual’s need for personal attendant care services. Without waiver assistance for my child’s care, we will not be able to continue as a two-person working household, which is absolutely necessary. The personal attendant care hours are essential to ensure we can provide attention and care to our other child, as well. I am deeply afraid of the implications of the Waiver changes on my son’s future when I am no longer able to care for him. I again echo all of the comments made by the Virginia Ability Alliance. Thank you. 

CommentID: 70082