Virginia Regulatory Town Hall
Agency
Department of Medical Assistance Services
 
Board
Board of Medical Assistance Services
 
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8/15/24  1:27 pm
Commenter: Brooke VanTyne

LRI
 

Parents are typically the only constant in their special need child’s life. The turnover rate for therapists, doctors, teachers, and the rest of the care team is through the roof. Allowing the parent to continue being the LRI for the child ensures the child receives care from the most knowledgeable individual. Training others to care for a non-verbal child is no easy task as one must learn nonverbal cues to meet the most basic of needs including feeding, toileting, amongst other wants and needs. On top of trying to find a qualified individual who is willing to be a caregiver parents are up against the fact that there are not an abundance of individuals willing or able. Retaining this individual for a length of time is another concern. Our children need a ton of accommodations from clothing to extra door locks which causes financial strain. Parents want to assure their children are safe and comfortable and the extra funds to care for our children allow us to do so.  

CommentID: 227384