Virginia Regulatory Town Hall
Agency
Virginia Department of Health
 
Board
State Board of Health
 
chapter
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System
Stage Proposed
Comment Period Ended on 7/9/2021
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7/7/21  10:02 am
Commenter: Richard Bragg

Important to screen for ALD in newborns
 

We've just learned that a friend of ours has been diagnosed with ALD.  It's important that screening for this rare genetic disease be conducted on newborns. Please add this test to the newborn screening

CommentID: 99348