|Action||Amend regulations based on recommendations of VA Genetics Advisory Committee|
|Comment Period||Ends 9/12/2014|
I would like to graciously thank everyone involved in making The Commonwealth of Virginia the latest state to screen all newborns for Severe Combined Immune Deficiency Disease (SCID), commonly known as bubble boy disease. It has taken the efforts of many people to finally reach this historic moment for the Commonwealth. All those who have been involved richly deserve to be applauded.
Mandating this screening will prevent infant fatalities and avoid potential expensive lifelong care that places an enormous burden on families and society. This law takes a huge step forward for Virginia healthcare policies, and I am grateful that all Virginia babies will now have the chance at a healthy life. It is my hope that every state includes SCID Newborn Screening on their newborn screening panel immediately to save lives.
Thank you all for making this day a reality here in the Commonwealth.