|Action||Amend regulations based on recommendations of VA Genetics Advisory Committee|
|Comment Period||Ended on 3/13/2013|
SCID (also known as the Bubble Boy disease) is a primary immunodeficiency disease that is a pediatric emergency. Babies with SCID, a disorder that causes babies to be more susceptible to and develop recurrent infections, appear healthy at birth but without early diagnosis and treatment cannot survive. The decision to screen for SCID will literally save the lives of infants in Virginia. If newborn babies are screened for SCID, diagnosed and treated within 4 months, there is a 94% chance that those babies will be able to live normal, healthy and productive lives.
As a person who struggles with a primary immunodeficiency every day of my life, I feel very strongly that SCID should be a part of babys' screenings. PLEASE do what you can to help the tiniest of Virginians toward better lives. Thanks.