Virginia Regulatory Town Hall
Virginia Department of Health
State Board of Health
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend regulations based on recommendations of VA Genetics Advisory Committee
Comment Period Ended on 3/13/2013
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2/13/13  5:42 pm
Commenter: Julie Vaughan

SCID testing

Please mandate SCID testing for newborns. This test can make the difference between life and death. Infants identified and treated within 4 months, are much less likely to succumb to the disease than those diagnosed later. Most people are familar with David Vetter- "The Bubble Boy", and his struggle to live. The treatment has come a long way since David passed away. Every child deserves a chance to live a healthy and happy life. Even if this test saves only 1 child a year, it is woth while, because to that family that 1 child is their world.

CommentID: 25929