Virginia Regulatory Town Hall
Virginia Department of Health
State Board of Health
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend regulations based on recommendations of VA Genetics Advisory Committee
Comment Period Ended on 3/13/2013
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2/13/13  11:19 am
Commenter: Elizabeth Parsons

Please include SCID in newborn genetic screening in Virginia!!!!

I beg of you - PLEASE include SCID testing in newborn genetic screening in Virginia.  I lost my very first grandson, Hayden Isac Parsons, to SCID's at age 3.  He was 2 years old when he was diagnosed with SCID's.  He went to Children's Hosptial for IVIG treatments and after his 3rd birthday, went to Children's Hospital for Chemo and Bone Marrow transplant. The bag busted and they gave him the BMT anyway.  He had complications from the BMT and he died.  No PARENTor GRANDPARENT should have to live in the unknown till they are later diagnosed with SCID's...and then lose their child.  PLEASE, I beg with a broken heart, include SCID testing on all newborns!!!  I can't have my precious Hayden back, but we CAN help other familes keep their children!  Do this for the children, do this for my precious Hayden!  Thank you!

CommentID: 25917