Action | Amend regulations based on recommendations of VA Genetics Advisory Committee |
Stage | NOIRA |
Comment Period | Ended on 3/13/2013 |
Echoing other comments on here - this is such an important measure to include SCID in newborn genectic screening tests in VA. For parents and doctors to have this knowledge ahead of time could mean the difference between life and death for these children - including my nephew who died at 5 months of SCID. Please enact this screening.