|Action||Amend regulations based on recommendations of VA Genetics Advisory Committee|
|Comment Period||Ends 3/13/2013|
My 4th child was diagnosed with SCID, but at an older age. His treatment and procedure would have been quicker and easier if diagnosed earlier in life. My 3rd passed away for, essentially, reasons unknown. After my 4th was born, they surmised my 3rd had SCID as well. My 3rd would have been diagnosed if the state had new born presecreening. Many children have been misdiagnosed or not diagnosed due to lack of screening.