"Family/caregivers acting as the employer on behalf of the individual (EOR) may not also be the CD employee. The primary caregiver shall not be authorized to serve as the paid CD employee for this service."

 - Even well prior to the pandemic many families had little to no access to care providers for children. The entire system is overwhelming, and we are not only caring for our children, including multiple Doctor/Therapy/ER/Urgent Care/Hospital visits, but endless phone calls (on hold often for an hour or more). Many parents cannot work due to the high level of care their children require, AND have to deal with endless paperwork, screenings, etc. We need to be able to be paid for this. Why should families go broke trying to care for our children with disabilities? We have no help, especially throughout the pandemic because for the raid paid for care providers, they have all left for other more lucrative employment. Please help us!