Virginia Regulatory Town Hall
Agency
Virginia Department of Health
 
Board
State Board of Health
 
chapter
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System
Stage Proposed
Comment Period Ended on 7/9/2021
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6/1/21  11:42 am
Commenter: Hannah Robbins

Regulations Governing Newborn Screening Services (amending 12VAC5-71-30) - Support the Rule Proposal
 

I fully support this proposal to implement newborn screening for ALD and SMA. One of my dearest lifelong friends was recently diagnosed as a carrier for ALD and was heartbroken to learn that the ALD gene is passed hereditarily meaning she would be putting her future child at risk. This is a LIFESAVING measure that would give families the opportunity to knowledge and be able to access medical care that would keep children alive. Please pass this initiative!

CommentID: 98896