Virginia Regulatory Town Hall
Agency
Department of Behavioral Health and Developmental Services
 
Board
State Board of Behavioral Health and Developmental Services
 
Guidance Document Change: The updates allow for Priority 1 applicants who do not receive funding to be placed in the funding pool with Priority 2 and Priority 3 applicants in order for the remaining unfunded Priority 1 applicants to have a chance at receiving an award.
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8/14/24  12:22 pm
Commenter: Kathy

IFSP Funding and Waivers
 

My daughter has been on the waiver wait list for over 18 years.  Just recently her case manager told me that she had been moved to priority 1.  While on the wait list, the IFSP fund has been offered, in the beginning on a first come, first served basis and now based upon priority level and approval of need.  Neither have met the needs of those on the wait list.  While we have fortunately received funds for various needs from the IFSP funds, I know that this year she will not be approved because she has received the funds in the prior period.  While I understand and am sympathetic to giving those who have not received funds first option, I think the overall concern here is that Virginia is not funding enough waiver slots to award to those who have been on the wait list for years and years with no hope of getting a waiver anytime soon, and secondly, there is not enough money allocated to the IFSP funds to allow all of those on the wait list, regardless of priority, to receive funding for the things that they need.  My daughter, obviously is an adult and cannot support and care for herself or be her own voice in these matters because of her disability.  I encourage you to look at the needs for these individuals and find a way to shift money from somewhere else to fund the waivers that are greatly needed to support individuals who, because of disability and income, are unable to support  and care for themselves. I have been told that the only way my daughter will be awarded a waiver is if her father and I pass away.  Well, we are still among the living, but we are both retired and living on a fixed income well below what we made when we worked, and both of us are aging.  At some point, we will become physically and financially unable to care for her.

CommentID: 227368