Thank you for opening a public comment period.

We would like the regulation/requirement on back up caregiver to be rescinded.

If that is not possible we propose it read:backup caregiver means the secondary person Or Agency who will assume the role of providing direct care to and support the waiver individual in instances of emergencies and in the absence of the primary caregiver who is unable to care for the individual. Such secondary person shall perform the duties needed by the waiver individual and shall be trained in the skilled needs and technologies required by the waivered individual.

( With that proposal we are adding agency can be backup and are deleting without compensation.)

I have a 28 year old son who wears pull ups,still needs to be wiped, and has bitten my finger off.(literally)  He has a history of biting . I have needed stitches on my face, surgery to close the finger stub, mrsa treatment from a bite etc.....  It is difficult to find people people who want to deal with this.   

The second request I have is that the managed care groups for Medicaid be required to give a written reason for denial when they issue a denial of claim. 

Thank you again for your willingness to listen. We do appreciate the waiver and our people and psychiatrist at Racsb. : ) 

Rebecca Burke

Tim Burke