Action | Amend regulations based on recommendations of VA Genetics Advisory Committee |
Stage | Proposed |
Comment Period | Ended on 9/12/2014 |
I am writing to urge you to add SCID testing to the list of routine testing done for newborns. I am a mother of young twins who lives in Virginia. I am fortunate to have healthy kids, but others aren't as lucky. We need to do all we can to prevent childhood diseases, but especially those like SCIDs that are largely preventable with appropriate, early screening. It would save money, but much more importantly, it would spare parents and other family members from such pain and suffering. Let's do it!