Life is difficult enough when caring for a sick loved one and now you want to dismantle the very help I am in desperate need of. You have stuck red tape on everything. I am a single parent. I am an agency parent. I am tired. I am burnt out. I am alone. I can’t work a regular job so I have to PCA for my child so that I can get him the care he needs when he needs it. He has relentless amounts of paperwork and appointments. Your new proposal makes me feel like I am walking into a nightmare. You want to cap off hours and take away respite. I don’t get paid enough to care for my family. I hardly get to sleep due to my child’s condition and now you are saying I am not worth respite so that I can keep my sanity and my own health in check. I guess I should start filling out the welfare forms because with these changes I will be too poor and too burnt out to make it. There are no clear rules for agency parents. I do classes every month. I have to do trainings every year. I had to pay $300 that got taken out of pay checks just to be certified to care for my own child on the waiver. JUST LEAVE EVERYTHING THE WAY IT IS & RAISE THE PAY FOR ROS. NO ONE wants to work for peanuts. I am dreading these changes to the point that I am burning all of my respite now because you don’t want me to have it. Shame on you. Walk a mile in my shoes then tell me this is fair.