Virginia Regulatory Town Hall
Agency
Department of Medical Assistance Services
 
Board
Board of Medical Assistance Services
 
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7/8/23  9:57 pm
Commenter: Kelly Kiser

Limiting hours
 

My daughter is currently approved for 50 hours per week. This is due to the multiple medical needs, being blind, non verbal, and unable to do anything for herself. She has very little use of her arms and legs and has a seizure disorder that is not completely controlled at this point and most likely never will be. She has a history of cardiac failure and requires multiple machines and controlled medications daily. I am her current caregiver not because of Covid but because there is no one I can hire to meet her needs and no family members willing to care for her while I work because of these needs. By limiting the hours below what has been determined that she currently needs would place a hardship on us. Leaving my employment to care for her was an extreme hardship. I went through our entire savings, and was using credit to pay for day to day needs until we were approved for the waiver. The waiver allows us to live while she gets the care she needs.  The purpose of a waiver was supposed to help the family not become a hindrance which is what the new proposal is doing. You want more oversight that is fine. Have someone check in more often. If a parent has a child that meets the criteria that the waiver requires then it is pretty obvious that the child is being overseen by a multitude of professionals for the medical needs. I know we personal see a specialist of some sort monthly and therapy multiple times a week. I really hope that you review what the current proposal is and make the changes needed to support families in the way that is needed.

CommentID: 217866