I'm an EOR for a widow mother of a terminal ill 17 yr old.  If she loses care giver status, she will have to work a public job.  Her child is in a lot of pain and is up most nights, soaking in hot tubs of water for pain relief in his back and legs. He has to sleep in a recliner due to not being able to breath when he lays down.  Now she can sleep when he sleeps. If she has to go to work, she would be working on little or no sleep.   We need to keep the mother in the home to spent the last days taking care of her child.