Virginia Regulatory Town Hall
Agency
Department of Medical Assistance Services
 
Board
Board of Medical Assistance Services
 
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7/3/23  6:38 pm
Commenter: Catherine Vaughan

EOR
 

I appreciate the fight to try to keep parents and spouses as paid attendants. Caring for my child is already stressful enough and something in which I had to leave my career to be able to do. I know many special needs parents/caregivers can relate. We live in a very rural county and have very little family support. Those that we do trust, simply are not qualified enough to care for my medically complex son. 

My huge concern is over the amendment so that another LRI can not be the EOR. I can't find a trustworthy family member or friend to come in and be a paid attendant, I'm not sure exactly how I am going to ask someone then to be an Non-paid EOR. Not to mention the breach of privacy that my child will now be subjected to, with having an EOR that is not a parent having access to all their very private information. Many parents are single parents, are in the military, or simply do not have the family support like we all dreamed we could have. And while I fully appreciate wanting to make sure that individuals are receiving the care they need and deserve, I do also want to mention that we are already subjected to so much oversight with service facilitators, our insurance care coordinators, doctors, therapists, school, and even more, I'm not sure what more you expect to find with having someone who is not LRI be the EOR. I hope that you consider editing the language here to allow for one LRI to be the EOR while another LRI is the paid attendant. Thank you. 

CommentID: 217667