Virginia Regulatory Town Hall
Agency
Department of Medical Assistance Services
 
Board
Board of Medical Assistance Services
 
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6/30/23  9:01 am
Commenter: Melody Bell

We are started moving in the right direction
 

Looks like we are we are moving in the right direction with the Parents Paid Caregivers under Consumer Directed. 

I do have some concerns that I would like to express. I have two children on the DD Waiver I am the EOR and have been since 2012. It has been nearly impossible to hire outside help due to pay, diagnosis’s, behaviors, daily living and etc. When Appendix K was put into place in 2020 my husband became a Caregiver.  Which has helped out tremendously. Now with the new stipulations being put into place for Parents Paid Caregivers under CD this puts constraints on so many families.

  • 40 hr. a week max cap of hours that they can work to provide care. Again it is really hard to find care for our children and we are usually have more hours budgeted. 
  • Having the other LRI being the parent or step parent. Some of us don’t have people we can trust to take on that responsibility or no one in a 50 mile radius.  Finding someone that would take on that UNPAID role. Be available for quarterly meetings. Looking for outside help and interview prospects to fit your children’s needs and disabilities. 

 

Please consider the above items. These will affect the families tremendously that need this to keep their child/children safe in their home environment. Look how much more expensive it is for group home or institution placement. 

 

Respectfully,

 

Melody Bell

CommentID: 217582