My child is diagnosed with a complex endocrine disorder that requires precise hormone management and frequent blood tests to monitor levels. Over time, I have become adept at recognizing subtle changes in my child’s condition that indicate a need for immediate medical attention, allowing me to adjust their care plan swiftly. The prospect of handing over this responsibility to someone who may not be as in tune with these critical fluctuations is unnerving, as any delay or mistake could have severe consequences. HB909/SB488 appropriately prioritizes my role as an LRI, understanding that my knowledge and vigilance are crucial in managing my child’s disorder. Any amendment that diminishes my involvement would expose my child to significant health risks, including hormonal imbalances that could lead to hospitalization. I have previously gone through the taxing process of completing The Objective Written Documentation Form, which required me to submit a vast amount of evidence to support my role as the primary caregiver. This included a detailed compilation of medical records, hormone level charts, and personal care logs, all meticulously documented and submitted for review. The process was not only time-consuming but also incredibly stressful, as every submission seemed to lead to further questions and demands for additional documentation. The emotional and physical toll of this process was overwhelming, as it required me to justify my every action and decision in caring for my child, despite the clear evidence of my effectiveness. The idea of having to navigate this bureaucratic maze again, especially under the proposed waiver amendments, is deeply troubling, as it threatens to undermine my ability to focus on what truly matters—my child’s health and well-being.