The LRI guardrails that were imemented caused a great deal of stress and worry for families that are already struggling to make it each day. I have not been able to find gainful employment until recently that would meet my son's needs for care. Allowing my husband and I to be caregivers for our son allowed us to ensure he received the care he needs and provide for our family. However, keeping us from using respite is a major hardship for us. We are unable to find a caregiver on a regular basis, hut removing the respite hours means that even if we have a caregiver occasionally or find a respite program we are unable to get the much needed break. My hope is that this will be reconsidered for all the exhausted caregivers of our profound need children.