Virginia Regulatory Town Hall
Agency
Virginia Department of Health
 
Board
State Board of Health
 
chapter
Regulations Governing Virginia Newborn Screening Services [12 VAC 5 ‑ 71]
Action Amend Regulations to add SMA and X-ALD to the Virginia Newborn Screening System
Stage Proposed
Comment Period Ended on 7/9/2021
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5/25/21  7:45 pm
Commenter: Tom Sheranek

FULLY SUPPORT ALD & SMA NEWBORN SCREENING
 

I fully support the proposal to add ALD to the newborn screening. My fiance recently found out she is a carrier of the ALD mutation,. With ALD on the screening panel, newborns and their parents will be able to begin all necessary treatments and precautions immediately so that the newborn can have every opportunity possible to fight this unpredictable disease.

CommentID: 98736