My child has a severe dermatological condition that causes painful, blistering skin lesions, requiring meticulous wound care and constant monitoring to prevent infections. Over the years, I have perfected the art of caring for their skin, understanding how to handle flare-ups and minimize discomfort while ensuring that wounds heal properly. The thought of entrusting this delicate care to an unfamiliar caregiver, who may not have the same level of expertise or attention to detail, is unacceptable. The provisions under HB909/SB488 have been critical in safeguarding my position as the primary caregiver, recognizing the specialized skills I bring to my child’s care. Amending these protections could lead to improper wound management, resulting in severe infections or further skin damage. I have previously faced the daunting task of submitting The Objective Written Documentation Form, a process that required me to gather and submit an overwhelming amount of documentation to prove the necessity of my role. This included detailed care logs, photographic evidence of wound progression, and numerous medical reports, all meticulously compiled and presented. The process was grueling, with each submission meticulously reviewed and often returned with requests for further evidence or clarification. The emotional strain of having to justify my ability to care for my child, despite years of successful management, was immense, leaving me feeling drained and frustrated. The thought of repeating this exhaustive process under the proposed waiver amendments is deeply concerning, as it would not only be a significant burden but could also threaten my ability to provide the critical care my child needs.