My child suffers from a severe form of spina bifida, requiring comprehensive care that includes daily catheterization, wound care, and vigilant monitoring for signs of infection. I have developed an in-depth understanding of my child’s condition, enabling me to manage their needs with the precision and consistency that only a dedicated parent can provide. The thought of having someone else, potentially less knowledgeable, take over these tasks is not only concerning but potentially hazardous. The safeguards established by HB909/SB488 have been instrumental in allowing me to remain the primary caregiver, ensuring that my child’s complex needs are met without error. If these protections are weakened or removed, my child’s health could be seriously compromised by caregivers who lack the necessary expertise. Previously, I had to navigate the arduous task of compiling the extensive documentation required for The Objective Written Documentation Form. This process involved gathering detailed medical histories, daily care logs, and expert testimonies to justify my role as the primary caregiver. The sheer volume of paperwork was overwhelming, and every submission was met with requests for further clarification or additional evidence, prolonging the process and adding to the stress. Despite my proven track record, the need to repeatedly prove my competence and the necessity of my involvement was exhausting and demoralizing. Should these proposed amendments take effect, I fear that I will once again be subjected to this draining bureaucratic process, jeopardizing my ability to focus on my child’s immediate care needs.