The current regulations under HB909/SB488 have wisely acknowledged the critical importance of my role as an LRI, ensuring that my expertise is prioritized in my child’s care.

I cannot express enough how disheartening it is to see the possibility of returning to the exhaustive documentation process. The endless back-and-forth with agencies, the need to provide detailed proof for every single aspect of my child’s care, it was overwhelming. The proposed changes would force families back into this cycle of frustration and stress. We deserve better than this. 

I strongly oppose the Application for 1915(c) HCBS Waiver: Draft VA.004.05.03 section that focuses on amending rules set by HB909/SB488 when an (LRI) is the paid aide/attendant for the personal care service. The potential loss of the current system threatens the consistent and expert care my child requires, and this is a fear shared by many families in similar situations.