My child is afflicted with a severe form of muscular dystrophy, a condition that requires relentless, specialized care to manage progressive muscle degeneration and prevent life-threatening complications. I have painstakingly developed a comprehensive care plan that encompasses everything from physical therapy to respiratory support, ensuring that each aspect of my child’s care is meticulously executed to slow the progression of their disease. The prospect of relinquishing this responsibility to a less familiar, potentially less skilled caregiver is distressing and dangerous. I must remain the first option to continue delivering the specialized care that my child’s condition demands. The provisions of HB909/SB488 have been instrumental in preserving the quality and consistency of care my child requires, recognizing that my expertise as an LRI is irreplaceable. Any move to amend these rules would be a grave misjudgment, risking the acceleration of my child’s decline under the care of individuals who lack the nuanced understanding necessary for such a complex condition. I firmly oppose the Application for 1915(c) HCBS Waiver: Draft VA.004.05.03, as it threatens to dismantle the safeguards that protect my child’s life and well-being, potentially exposing my child to unnecessary risks.