Virginia Regulatory Town Hall
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Department of Medical Assistance Services
 
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Board of Medical Assistance Services
 
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8/30/24  1:48 pm
Commenter: Anonymous

HB909/SB488 (2024)
 

My child has an intractable seizure disorder that requires constant vigilance and immediate intervention with rescue medications. I have mastered the timing and administration of these medications, which is critical in preventing prolonged seizures that could cause brain damage. A new caregiver less familiar with my child’s specific triggers and needs might not act quickly enough in an emergency. I should be the first option to provide the expert care that my child’s condition demands. Remaining as the LRI is vital because my swift and knowledgeable actions are the first line of defense against devastating seizures. Any amendment that reduces my role could delay critical interventions, leading to severe neurological damage or death. I strongly oppose the Application for 1915(c) HCBS Waiver: Draft VA.004.05.03 03 section that focuses on finalizing/amending the rules set by HB909/SB488 when an (LRI) is the paid aide/attendant for the personal care service as it places children with severe seizure disorders at unacceptable risk.

CommentID: 227532