My child has a complex congenital heart defect that requires meticulous monitoring and care to prevent cardiac emergencies. I have become proficient in managing their condition, from monitoring vital signs to recognizing early signs of distress. A new caregiver unfamiliar with my child’s specific needs could miss critical indicators, leading to a potentially fatal cardiac event. I should be the first choice to continue providing the specialized care my child needs to stay alive.

My role as the LRI is fundamental in ensuring the continuous monitoring and specialized care required for my child’s congenital heart defect. Any amendment that relegates me to a secondary option could result in missed warning signs of a cardiac event, placing my child at an unacceptable risk of a fatal outcome.

The support from HB909/SB488 has been instrumental in allowing me to maintain the level of care required for my child’s complex heart condition. The Virginia General Assembly’s actions have been essential in safeguarding my child’s life. Amending these provisions could introduce caregivers who are not adequately trained to manage such a severe condition, increasing the risk of a cardiac emergency. The current waiver draft could force us to depend on caregivers who might not recognize subtle signs of cardiac distress, leading to life-threatening consequences.