Virginia Regulatory Town Hall
Agency
Department of Medical Assistance Services
 
Board
Board of Medical Assistance Services
 
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8/30/24  2:30 pm
Commenter: Anonymous

LRI
 

My child’s intractable seizure disorder necessitates an unparalleled level of vigilance and immediate intervention with rescue medications to prevent irreversible brain damage. I have developed an acute awareness of my child’s seizure triggers and possess the ability to administer life-saving medicines within moments. This skill cannot be easily transferred to a new caregiver. The thought of placing my child’s life in the hands of someone unfamiliar with these critical nuances is unacceptable. I must be the first and only choice to provide the expert, responsive care that my child’s condition demands. HB909/SB488 have appropriately recognized the indispensable role of an LRI in managing such severe medical conditions, ensuring that my position as the primary caregiver is protected. Any amendments that seek to undermine this protection would recklessly expose my child to delayed interventions, potentially leading to catastrophic health outcomes. I strongly and unequivocally oppose the Application for 1915(c) HCBS Waiver: Draft VA.004.05.03 03 section that focuses on finalizing/amending the rules set by HB909/SB488 when an (LRI) is the paid aide/attendant for the personal care service as it threatens to strip away the critical safeguards that preserve my child’s health and safety.

CommentID: 227536