My child suffers from a life-threatening respiratory condition that demands constant vigilance and the precise administration of oxygen therapy. Over the years, I have honed my ability to manage their ventilator and respond instantaneously to signs of respiratory distress, ensuring that my child’s breathing remains stable and safe. The thought of an unfamiliar caregiver, potentially inexperienced in the subtleties of this equipment, fills me with profound concern, as even a minor error could prove fatal. I must remain the primary caregiver, ensuring that my child continues to receive the expert, immediate care that their condition necessitates. The current regulations set by HB909/SB488 recognize the critical role I play as a Legally Responsible Individual (LRI) and rightfully prioritize my involvement in my child’s care. Any amendments to these rules that deprioritize my role would recklessly endanger my child, potentially placing their life in the hands of those ill-equipped to manage such severe medical needs. I vehemently oppose the Application for 1915(c) HCBS Waiver: Draft VA.004.05.03, particularly its attempt to undermine the established protections that allow me to safeguard my child’s fragile health.